CHD Support Groups and Organizations for Heart Families

February 7-14 marks Congenital Heart Defect Awareness Week! During this time, everyone is encouraged to help raise awareness of this serious medical condition. CHD is the number one birth defect that affects every 125 babies every year in the United States. Parents whose children are diagnosed with CHD are presented…

Read more

Stylish Medical IDs to Wear in 2018

Medical IDs are an important accessory for people living with medical conditions. They’re a simple yet effective way to communicate crucial health information during an emergency. Once considered plain, boring, and unfashionable – medical IDs now have a variety of styles that can match the latest fashion trends of 2018.…

Read more

Celebrating child life professionals this March

child life

“Children process information from the world around them much differently than adults,” explains the Child Life Council. “They have distinct needs for managing the effects of stress and trauma.” Child life specialists are pediatric health care workers who help kids and their families manage to deal with chronic illness, hospitalization…

Read more

Meet Hawkins: two-year-old with hydrocephalus and joy for life

Hydrocephalus

September may be the turning point between seasons. Summer fades into the cooler weather of spring as leaves change and the air lightens. But the month is also an opportunity for people around the country to rally support for raising awareness of hydrocephalus during National Hydrocephalus Awareness month. Hydrocephalus is…

Read more

Your Back to School Resources for Managing Epilepsy

epilepsy

Although as many as 1 in 26 people in the Unites States will develop a seizure disorder, the condition is not as commonly discussed as food allergies among children returning to school. But the challenges can be just as great for children managing epilepsy and their families. Communication is key…

Read more

7 Back to School Accessories for Children with Diabetes

children with diabetes

Back to school shopping is one of the busiest times of year for retailers. Parents re-evaluate what clothing fits and isn’t worn through, kids beg for the hottest sneakers and backpacks. But for children with diabetes, going back to school is also a time to think about how they will…

Read more

Back to School with Chronic Heart Disease

back to school heart

Back to school time is here, and for many families, there is an excited frenzy that accompanies it. While children’s faces light up at the thought of new clothes, backpacks and accessories, their parents simultaneously feel relief and stress. These feelings can be amplified for parents of children with chronic…

Read more

Choosing the Right Medical ID for Back to School

Raising children is hard enough.  Getting them to wear a medical ID shouldn’t be part of the struggle.  We have tons of styles and materials from which to choose, so make an effort to include your child or teen in the selection process.  After all, the best medical ID is…

Read more

A Mother’s Love: My Son has Chronic Heart Disease

chronic heart condition mother's love

Submitted by Jodi Lemacks Mother’s Day is not just about getting Mom the perfect present; it’s about celebrating the relationship between mothers and their children. One mother recently shared with us an update on her son who has lived with a chronic heart disease his entire young life. Joshua Lemacks,…

Read more