Raising Awareness of Marfan Syndrome

It was an ordinary day for Jamie Efurd. She and her daughter Callie (age 4) were only going to the ophthalmologist to get Callie some glasses. Things changed all of a sudden when the doctor mentioned Marfan syndrome and the need for a cardiologist appointment. “I needed fresh air immediately…

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Meet Hawkins: two-year-old with hydrocephalus and joy for life

Hydrocephalus

September may be the turning point between seasons. Summer fades into the cooler weather of spring as leaves change and the air lightens. But the month is also an opportunity for people around the country to rally support for raising awareness of hydrocephalus during National Hydrocephalus Awareness month. Hydrocephalus is…

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Your Back to School Resources for Managing Epilepsy

epilepsy

Although as many as 1 in 26 people in the Unites States will develop a seizure disorder, the condition is not as commonly discussed as food allergies among children returning to school. But the challenges can be just as great for children managing epilepsy and their families. Communication is key…

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How to Have a Blast Watching Fireworks if You Have Epilepsy

fireworks with epilepsy

  Holidays like the Fourth of July are a great time to get together with friends and family. However, those who have photosensitive epilepsy might be worried about watching the traditional fireworks displays. Here’s a brief explanation of the condition and tips for an enjoyable holiday. What is Epilepsy? Epilepsy…

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Myasthenia Gravis Awareness Month – What is it?

June is Myasthenia Gravis Awareness Month This June marks the fourteenth annual “Myasthenia Gravis Awareness Month,” a nationwide movement created by the Myasthenia Gravis Foundation of America, Inc. (MGFA) to raise awareness of the often misunderstood and under-diagnosed disease, Myasthenia Gravis (MG).  MG strikes people of all ages, races, and…

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